Family Gajic gives strength to the entire world: "Only mom's heart believed in impossible, between Tatjana's grave and Milana's hospital bed" (VIDEO)

The film crew, is in addition to the family Gajic, talked with other families whose children suffer from Lafora disease, and professionals who deal with this disease

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After almost two years of work and filming in Canada, France, Belgium, Serbia, Croatia and Bosnia and Herzegovina, a documentary movie had its premiere last night on Banski Dvor in Banja Luka, by Denis Bojic, "Faces of Lafora". The film is following the fate of family Gajic and their ten years long super human fight for finding the medicine for the most severe form of Epilepsy - Lafora disease, and the their girls who suffered from it in teenage days, till then entirely healthy Tatjana and Milana. 

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Brave Tatjana's heart stopped beating on 14 October 2014 at the age of 23. Milana is still fighting and the parents Snjezana and Vitomir Gajic did not stop for a moment from alarming the public and searching for the cure that will save Lafora children around the world, writes buka.com.

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Parental sacrifice, fight for a cure and great humanity of couple Gajic who are fighting for the life of their children are indirectly saving lives of children around the world, and that is what encouraged Bojic to make this film.

As he said on the premiere of the movie, we often spend our lives vegetating under a canopy roof of apparent safety, spending days, without finding out whats our part, what are we doing in this world, besides lasting and existing and vanishing without notice. This movie, on the other hand, he emphasized, speaks about people who gave the answer o the question what is their role in this life and what is a man at all, and at the same time, they showed that you can win in life only if you take matters in your own hands. 

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- Its not easy transmitting 10 year long agony and struggle of family Gajic into movie, you should become a friend, a brother, a scientist and a doctor, and that would all not be enough to understand what is Lafora disease and what are the families going through who meet with this disease - said Bojic.

- Only the mother's heart believed in impossible, only it had the strength to spend time between Tatjana's grave and Milana's hospital bed and to find room for smile and hope. Only mother's heart had the strength to unify us all, to believe for us and to make a step towards the end of this road - he said.

The reviewer of the film, the famous actor Branislav Lecic believes that this is one of the most powerful stories coming from this area, but it also has a global, planetary character.

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- There is no humanity in us without these actions, there is no recognition of anything more important, and that is heroism that exists in this movie, family Gajic who managed to move the world - said Lecic.

The film crew, is in addition to the family Gajic, talked with other families whose children suffer from Lafora disease, and professionals who deal with this disease, but also with Berge Minassian, professor and doctor of one of the most famous and the oldest child clinics in the world "Sickkids" in Toronto, family Gajic found about during their search for medicine

Thanks to friends, relatives and strangers who have joined in their actions, Gajic family have collected more than 510,700 euros and invested the money in research conducted by a team of Minassian doctors with the aim to discover the drugs for Lafora disease, writes buka.com.

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Doctor Minassian was in Banja Luka last year to mit Milana and her parents and then he brought encouraging news - people sick with Lafora disease could expect drugs in one year time. 

You could say even more, that the medicine for Lafora disease, according to the leading experts, will be effective in multiple ways with wider specter of neurological diseases, including ALS and Alzheimer's, and Parkinson's disease.

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Watch the video:

(Telegraf.co.uk)

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