(EXCLUSIVE) These two boys are TWO IN A MILLION and have never met someone like themselves ... UNTIL NOW! (PHOTO) (VIDEO)

Have you ever cried with the "difficult" problems that you face, or for a moment stopped and thought about how your life would look like if you, for example, if you were born with one of the rarest diseases in the world.

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No doubt you have ... but we also have no doubt that it did not take you more than a minute and a half and followed that famous sentence: "Uh, I am good enough as it is, why am I wanting for more!"

Here, again, probably every deeper reflection ends.

How it really looks like to be like that 24 hours daily since leaving the womb, to live with the disease, the rarest in the world, with no privileges to any time rely on "i am good as it is" only Hawkins Oven (9) and Giovanni Algarin (7) know, who's meeting and life with extremely rare Schwarz-Jampel syndrome follows a series of "Two in a million".

They are actually ordinary boys with an unusual disease. Their muscles are constantly tense, suffering from incurable pain and were sentenced to a wheelchair. They are called the "Boys of Steel," and they've never had the opportunity to get to know someone like themselves... until now.

The Telegraf team brings you an exclusive interview with Owen and Giovanni, two usually - unusual boys inviting you to an unusual story about their encounter that is followed in the series "Two in a Million" (TLC, 5 June at 20.00).

Foto: TLC

What was the first think that went through your mind when you met?

Owen: I was very excited. It's amazing to finally meet someone who understands what I go through. I am seeing with Giovanni once or twice a month, and when you ask me what my goal or dream in the future, I think - again to see Giovanni! He's my best friend!

Giovanni: When we're not together, we make sure to hear from eachother over Skype. And it's every other week. At the first meeting I was very surprised when I saw how much we are alike!

Foto: TLC

Do you ever get sad because of your illness and whether you are talking with each other about it?

Owen: Sometimes, but it happens very rarely. There is, in fact, a piece of advice that I gave him, in connection with the life of Schwarz-Jampel syndrome. I told him: "If you are worried or scared, tell the teacher" ... That's what I told him.

Giovanni: I remember the first thing i shared with Owen is that my second hip is dislocated ... Otherwise, I taught him how to start his wheelchair.

Shannon (Giovanni's mother): This was a great achievement. I remember when Ken came to us and said that Owen asked whether i'm sure he can control his wheelchair, because he saw that Giovanni's has done it.

Foto: TLC

Giovanni, are there times when you want to just give up? What draws you to be stronger than today? Since you're obviously a very strong boy.

Giovanni: I always wear my "never give up" towel.

Shannon (Giovanni's mother): Giovanni met John who gave him a towel that says "never give up" and that towel has become very important for Giovanni, he carries it everywhere.

Foto: TLC

Many people see you as little heroes ... You really are "two in a million" ...

Owen: It's a great feeling to be special, I could not wish for a better life.

Giovanni: Life as we live, makes me feel special, and different.

Owen, the world has once circled the story of  your encounter with a dog with three legs Hachie, a German shepherd who was tied to the tracks and barely stayed alive ...

Owen: It makes me happy every day! I love to play with him and forget about it. In addition to my dad he is the highest authority in my life.

Giovanni: I, for example, put away my thoughts of the illness by playing video games. And when I grow up, I want to be a veterinarian. I really love animals.

Printskrin: Youtube / A Boy and His Dog

How do you deal with the reactions of people when they see you? By now you are probably famous?

Owen: Yes, i am shocked of being famous. But in a positive way.

Giovanni: A bunch of people recognize me when I go to the store. And it makes me happy!

Printskrin: Youtube / A Boy and His Dog

How to educate people about Schwarz-Jampel syndrome?

Owen: We are trying to inform people about this disease ... that is the question for dad!

Will (Owen's dad): Yes, we are trying to create awareness about this disease. The worst thing you can do is just watch and ignore the people who have some kind of disability. People like Owen, and even when they are adults, are normal people. They use wheelchairs or walkers to be able to move and do not mind if you ask them what happened or what is wrong. I have several friends who have lost limbs in the army and when Owen meets them, he's happy to ask what happened to them. How they have lost a leg or arm. I do not mind when people asked. If they ask a question, Owen and others provide an opportunity to explain their disorder and educate people about it. In this way, to inform the children who are, by nature, very curious. They want to talk to Owen and examine him about his illness because he is very happy to provide answer. In this way, Owen tries to overcome barriers and delete the label "handicapped".

Giovanni: We teach others with my mother reading a book about a dwarf growth to my class.

Shannon (Giovanni's mother): We wrote a children's book titled "Meet Giovanni," which is illustrated by my husband. I've wrote it, and every year we read this book to his schoolmates.

(Telegraf.co.uk)