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“Duže od godinu dana nisam ništa jela”: Loren je alergična na svu hranu koja postoji

Dvadesetogodišnjakinja boluje od retkog sindroma za koji još ne postoji lek

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Loren Vitering, printscreen Instagram

Loren Vitering, printscreen Instagram

Alergije na hranu i netolerancija na pojedine namirnice mogu da otežaju svakodnevni život. Svako ko burnije reaguje na orašaste plodove, jagode, jaja ili plodove mora zna koliko mora da vodi računa prilikom izbora namirnica.

Ali ono što Britanka Loren Vitering svakodnevno doživljava graniči se sa najvećom noćnom morom. Ova devojka pati od sindroma aktivacije mastocita, koji čini da sva hrana, bez izuzetka, kod nje izazove najteže alergijske reakcije. Čak i ako samo pomiriše bilo koju namirnicu, Loren može da se onesvesti!

Prvi simptomi - alergija na soju i mlečne proizvode

Kod Loren su se prve teške alergije razvile još dok je bila u školi. Najpre je reagovala na alkoholne rastvore na času hemije, zatim na soju i mlečne proizvode. Simptomi su se toliko pogoršali da je završila u bolnici.

- Otprilike godinu dana mogla sam da pojedem samo pet namirnica: piletinu, pirinač, krompir, šargarepu i brokoli - kaže Loren. - Onda sam, manje-više preko noći, postala alergična i na svu ostalu hranu, pa nisam mogla ništa da jedem.

Posle šest meseci u bolnici, dijagnostikovan joj je sindrom aktivacije mastocita (MCAS). Reč je o bolesti imunog sistema u kojoj mastociti - sopstvene odbrambene ćelije tela - reaguju neadekvatno. Pored ostalih supstanci, mastociti su odgovorni i za histamin.

U slučaju alergijske reakcije, ova supstanca izaziva oticanje sluzokože, crvenilo kože ili proširenje krvnih sudova. U sindromu aktivacije mastocita, međutim, mastociti preterano reaguju i to dovodi do povećanog oslobađanja histamina - a samim tim i do ekstremne alergijske reakcije.

"Nisam jela ništa više od godinu dana"

Pored toga što je alergična na hranu, Loren ne podnosi ni alkohol, parfeme i duvanski dim. Njeno stanje se sada toliko pogoršalo da nije jela više od godinu dana.

- Čak i sam miris hrane mi smeta, od njega mogu da padnem u nesvest - žali se Loren.

 
 
 
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MY LIFELINE 🙌🏻🙌🏻•••••••••••••••••••••••••••••••••••••••••••••••••••••••the 2 little lines in my arms have literally kept me alive the last 2 months 😍 one giving vital IV nutrition as I’ve become anaphylactic to all foods and feed unless it’s super slow and therefore not enough nutrition 💓 the other giving vital IV meds to stop anaphylaxis to said IV and enteral nutrition 😂 today I got a longer term Hickman placed 🙌🏻 IR were honestly amazing they had me down first thing before any cleaners were used - anaesthetics present should anything go wrong 💓 and premedicated me fully 😊 sadly the wrong line was placed with only one lumen - the doctor was SO apologetic - they were preoccupied with worrying about my severe reactions to EVERYTHING 😂 and keeping me safe 🙏(which they did) and I’d much rather go back down tomorrow for a pretty simple switch (just another cut in my neck and line switch over guidewire) than be in ITU like with my picc when they didn’t take precautions 🙄 ••••••••••••••••••••••••••••••••••••••••••••••••••••••Here is to my new little lifeline - literally the line keeping me alive and giving me life 😍 couldn’t be more thankful for this amazing technology ; I was told i wouldn’t survive months the way I was but this incredible access to TPN has made me feel like a new person 😍🙌🏻- my double lumen Hickman is going to be so much better 😊 can’t wait to reveal the name tomorrow 😉 a few people have already guessed 🙌🏻 pots of love and hope as always and thanks SOOOOO MUCH for your support and messages xx

A post shared by Lauren wittering (@potsofhope) on

Da bi joj spasili život, lekari su obezbedili Loren sondu za hranjenje, Ali, ubrzo se ispostavilo da je alergična i na nju! Jedino što im je preostalo bilo je da omoguće direktan pristup Loreninom srcu, kroz koje ona sada dobija najvažnije hranljive materije. 

Uprkos svemu ovome, Loren je hrabra. Želi da postane nutricionista i polaže velike nade u razvoj farmaceutske industrije.

 
 
 
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🍩 Donut worry ; Be happy 🍩 ——————————————————————— I hope you’re all doing well 😊 honestly things health wise aren’t going great ☹️ I’ve recently had an appointment with my POTS consultant 👨‍⚕️, and a meeting with my nutrition team 🍎 my feed is at less than half the rate it needs to be and I’m continuing to lose weight 😞 but without the ketotifen I desperately need I can’t increase my rate without anaphylaxis and TPN isn’t an option because of the ingredients 💕 my bloods are dodgy and my potassium is very low but I can’t tolerate the meds so keep having to have infusions but they’re trying to find a more neutral potassium supplement I can tolerate 🍌 were going to try a elemental fat supplement to add to my feed to add some calories ; it only has a couple ingredients and won’t be enough but it’s a lot of calories in a small amount 🍔🍟 so we’re hoping adding it really slow I’ll tolerate some of it ✅ I see my MCAS specialist in March so I’m hoping she’ll have some more recommendations too 🙏 for now I’m just sleeping lots 💤 and conserving energy 😂 I hope you’re all doing okay I’m always a message away Pots of love and hope 💓 and I hope if nothing else this donut and pun bought a smile to your face today 😂

A post shared by Lauren wittering (@potsofhope) on

- Čekam da novi čudotvorni lek iz SAD uskoro bude odobren za klinička ispitivanja. Uverena sam da ću jednog dana uspeti da tolerišem bar neku hranu i da neću više biti alergična na sve.

Kako se javlja sindrom aktivacije mastocita?

Malo je poznato šta uzrokuje bolest. Naučnici smatraju da bi aktivacija mastocita mogla da bude nasledna. Bolest u početku može biti blaga, ali se vremenom pogoršavaju simptomi na koje destruktivno utiču hirurške intervencije, kao i snažan emocionalni stres.

 
 
 
View this post on Instagram

MY LIFELINE 🙌🏻🙌🏻•••••••••••••••••••••••••••••••••••••••••••••••••••••••the 2 little lines in my arms have literally kept me alive the last 2 months 😍 one giving vital IV nutrition as I’ve become anaphylactic to all foods and feed unless it’s super slow and therefore not enough nutrition 💓 the other giving vital IV meds to stop anaphylaxis to said IV and enteral nutrition 😂 today I got a longer term Hickman placed 🙌🏻 IR were honestly amazing they had me down first thing before any cleaners were used - anaesthetics present should anything go wrong 💓 and premedicated me fully 😊 sadly the wrong line was placed with only one lumen - the doctor was SO apologetic - they were preoccupied with worrying about my severe reactions to EVERYTHING 😂 and keeping me safe 🙏(which they did) and I’d much rather go back down tomorrow for a pretty simple switch (just another cut in my neck and line switch over guidewire) than be in ITU like with my picc when they didn’t take precautions 🙄 ••••••••••••••••••••••••••••••••••••••••••••••••••••••Here is to my new little lifeline - literally the line keeping me alive and giving me life 😍 couldn’t be more thankful for this amazing technology ; I was told i wouldn’t survive months the way I was but this incredible access to TPN has made me feel like a new person 😍🙌🏻- my double lumen Hickman is going to be so much better 😊 can’t wait to reveal the name tomorrow 😉 a few people have already guessed 🙌🏻 pots of love and hope as always and thanks SOOOOO MUCH for your support and messages xx

A post shared by Lauren wittering (@potsofhope) on

Lek za ovu bolest ne postoji, ali se simptomi mogu ublažiti upotrebom različitih lekova kao što su stabilizatori mastocita ili antihistaminici. Dijeta sa niskim sadržajem histamina i izbegavanje okidača kao što su dim, boje, alkohol, određena hrana i lekovi mogu da pomognu kod blagih simptoma.

Video: Sve o alergijama: Kada se javljaju i kako se zaštiti

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